PLMET:

click here to follow the link

Alternative title:

Parents facing the burden of caring for a child with a rare disease – cystic fibrosis

Subject and Keywords:

rare diseases   children   cystic fibrosis   caregiving burden   parents

Abstract:

Cystic Fibrosis (CF) classified as a rare disease, is the most common life--limiting genetic disorder of Caucasians. It impairs the functions of many organs with its greatest effects on the lungs and digestion. Treatment of the disease involves a multicomponent regimen and it is a burden for patients and their families in the context of their daily life tasks.

Place of publishing:

Wrocław

Publisher:

Wydawnictwo Naukowe EDUsfera

Date issued:

2022

Detailed Type:

article

Identifier:

ISSN 2082-9019   e-ISSN 2300-5866

DOI:

10.34616/wwr.2022.3.117.134

Source:

Pdg P 343

Language:

pol

Is referenced by:

click here to follow the link

Access rights:

Attribution, ShareAlike

License:

Creative Commons - Attribution, ShareAlike (CC BY-SA 4.0)

Rights holder:

Wydawnictwo Naukowe EDUsfera. Ewa Jurczyk-Romanowska

Location of original object:

Biblioteka Instytutu Pedagogiki UWr

Autor opisu:

z.m.