@misc{Zubrzycka_Renata_Rodzice_2022,
 author={Zubrzycka, Renata},
 copyright={Wydawnictwo Naukowe EDUsfera. Ewa Jurczyk-Romanowska},
 address={Wrocław},
 howpublished={online},
 year={2022},
 publisher={Wydawnictwo Naukowe EDUsfera},
 language={pol},
 abstract={Cystic Fibrosis (CF) classified as a rare disease, is the most common life--limiting genetic disorder of Caucasians. It impairs the functions of many organs with its greatest effects on the lungs and digestion. Treatment of the disease involves a multicomponent regimen and it is a burden for patients and their families in the context of their daily life tasks.},
 title={Rodzice wobec obciążenia opieką nad dzieckiem z chorobą rzadką – mukowiscydozą},
 type={tekst},
 doi={https://doi.org/10.34616/wwr.2022.3.117.134},
 keywords={rare diseases, children, cystic fibrosis, caregiving burden, parents},
}